Trying to find our way through our child's eyes.

We Don’t Want a Cure, We Want Acceptance

Posted by Emily in Daily Life

I’m a little tired of people asking about a cure for Autism. I don’t think we need a cure, we just need people to accept those that are autistic are different. They aren’t less of a person because of their differences. They aren’t to be made fun of, or mocked. They are to have the same respect as you would give anyone else.

we don't want a cure we want acceptance

autism speaks

Denver Autism Speaks Walk May 11, 2013

Posted by Emily in Uncategorized

autism speaks

 

Donate to Brady’s Team!

 

Coors Field

Saturday, May 11, 2013

Join Autism Speaks as we walk to change the future for all who struggle with autism!

Walk Now for Autism Speaks is a fun-filled, family friendly event and is our single most powerful force to fund vital research that will lead us to the answers we need. Experience the power of thousands united by a single cause by joining Walk Now for Autism Speaks. Autism is the fastest-growing serious developmental disorder in the U.S. – we need more volunteers to join our fight. Whether this is your first walk or the 10th, take the first step and register today. You will not only raise funds, but you will become a part of a fun and supportive family-focused community.

Every 11 minutes, another family receives the devastating news that their child has an autism spectrum disorder. Help us change that! Start fundraising today. Whether you strive to join our new “Grand Club” (walkers that raise $1,000 or more) or sell lemonade to boost your total or create your own unique event, you become a part of the solution! Don’t wait another minute – start a corporate, school or family team today!

We look forward to seeing you at the event!

ayialogowp

Insurance Issue #4,873

Posted by Emily in Daily Life

We finally got new insurance that covers autism. YAY! But our old insurance is not sending us the certificate of credible coverage that we need in order to avoid the pre-ex clause. I want to scream. I’ve called 7 times to get this so far. SEVEN. Told it was “in the mail” 3 weeks ago. Never received it. Gave them a fax to send it to, nothing. Finally got someone who hand wrote it and put it in front of her supervisor marked urgent. Nothing.

At this point I’m ready to look into legal action to get the darn thing. What a mess!

Insurance Catch 22

Posted by Emily in Daily Life

We have insurance. Yay!

They cover *some* autism claims. Yay!

They never tell me what they will cover or why.

They deny everything first. Then I call, then it’s paid.

But I need that denial to switch insurance.

New insurance company will pay for the ABA and all therapies! YAY!

But we can’t get on new insurance until we get that denial letter.

Got a denial letter. YAY!

Nope, “wrong type of denial”

S#!t.

 

Holy Success!

Posted by Emily in Daily Life

We are finally making progress with potty training! WOOT!

At first he was scared to death of what was going on, but now he’s telling us when he has to go! Baby steps!!

 

 

Ten Commandments for Interacting with Kids with Autism

Posted by Emily in Quotes

Saw this on facebook and loved it! Source: TechNewsZone

TEN COMMANDMENTS FOR INTERACTING WITH KIDS ON THE AUTISM SPECTRUM

1. Thou shall not yell when speaking to me.
My Autism does not impair my hearing and I am extremely bright. Perhaps even brighter than you are.

2. Thou shall not ignore me, talk negatively about me, speak unnaturally slow, or ask questions to others in the room that pertain to me.
I can comprehend what you are saying just fine.

3. Thou shall believe in me and help me believe in my skills and self worth.
Note the good in me and do not merely point out my negative behaviors. Believe in me and I will believe in myself.

4. Thou shall not perceive me as dumb.
I am extremely intelligent. I do not learn in the same way as you, and maybe not as quickly as you expect me to. Have patience with me. Once I recall information, I never forget.

5. Thou shall not judge my behavior.
I can get overstimulated in certain environments. I may be hypersensitive to sound and loud noises may hurt my ears. Fluorescent lights are distracting for me. They have a humming noise, and can pulsate. All the noises in a room can blur together. Please make accommodations to help me.

Read the rest here - http://technewszone.com/ten-commandments-interacting-kids-autism-spectrum-mari-nosal-related-commandments/

Ten Commandments of Autism

Potty Training Post #457

Posted by Emily in Uncategorized

We have pee in the potty!!! Not all the time, but a couple times at least.

He was scared s#!%less the first time it happened so we read Once Upon a Potty a hundred times and then tried again. He was only slightly shocked and disturbed the 2nd time and the 3rd time he went he said “woohoo!!”

I went out and bought him some die cast helicopters for the next few times he goes as a reward. Let’s pray bribery works on an autistic kid just as well as it worked on my typical kids.

Birthday parties with an autistic kid

Posted by Emily in Daily Life, Photos

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Brady got invited to a birthday party of a friend from school. I was nervous. How would he act? Would parents think oddly of my son? Would the kids play with him?

Turns out all of my fears were for not. He did brilliantly well and played with his friends and they were glad to have him there. None of the parents mentioned anything, most already knew he’s autistic, and there were even gluten/dairy/soy free treats!

The party was at a rec center in the gymnastics area and he had a blast in the foam pit!

Brady Foam Pit

Potty Training an Autistic Kid

Posted by Emily in Daily Life

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Wow. Who would have though potty training would be this over-a-year long journey?! It’s not even close to being over yet. Our ABA is so determined to train him. I’m stepping back and letting her do her thing.

Some things we’ve tried:

  • cherrios in the toilet (well, modified to trix and chex since he’s gluten free)
  • sitting on potty and filling him with water/juice
  • standing at potty like Daddy
  • undies
  • naked training
  • timers
  • mini potties, singing potties, big potties, potty chairs, potty seats

Now we are taking yet another new approach. We are 99% convinced he’s trained, but to his pull-up. So now our ABA suggested cutting a hole in the diaper/pull-up and that way he has it on, but can pee out of it. It *might* be working, but for now he’s only peed on the floor. Then screamed, then cried, then said “uh-oh pee-pee” 157 millions times in a row.

So to recap… Still not trained, freaks when pees on the floor.

Yeah, I’m guessing he’ll be potty trained by 14 at this rate.

potty training autism

Speech Burst

Posted by Emily in Daily Life

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B has added all sorts of word to his repertoire. “read” “ow” “run” just to name a few. His speech therapy today went well. He pushed back but not for a while into therapy. He does this new thing where when you ask him to say something he doesn’t want to say, he says “I nigh night” and hides his face and acts tired. Little punk! ;)